Volume 27, Issue 1 (3-2019)
Avicenna J Nurs Midwifery Care 2019, 27(1): 55-63 |
Back to browse issues page
Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:
Alaee N, Mohammadi-Shahboulaghi F, Khankeh H, Mohammadkhan Kermanshahi S. Effective Factors on Caring Role of Parents of Children with Cerebral Palsy. Avicenna J Nurs Midwifery Care 2019; 27 (1) :55-63
URL: http://nmj.umsha.ac.ir/article-1-1862-en.html
URL: http://nmj.umsha.ac.ir/article-1-1862-en.html
Nasrin Alaee1 
, Frahnaz Mohammadi-Shahboulaghi * 2, Hamidreza Khankeh3 , Sima Mohammadkhan Kermanshahi4
, Frahnaz Mohammadi-Shahboulaghi * 2, Hamidreza Khankeh3 , Sima Mohammadkhan Kermanshahi4
1- Department of Nursing, Faculty of Nursing and Midwifery, Shahed University, Tehran, Iran
2- Assistant Professor, Social Determinant of Health Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran ,mohammadifrahnaz @ gmail.com
3- Associate Professor, Department of Nursing, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran
4- Associate Professor, Department of Nursing, Faculty of Medicine, Tarbiat Modares University, Tehran, Iran
2- Assistant Professor, Social Determinant of Health Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran ,
3- Associate Professor, Department of Nursing, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran
4- Associate Professor, Department of Nursing, Faculty of Medicine, Tarbiat Modares University, Tehran, Iran
Abstract: (5013 Views)
Introduction: Parents of children with cerebral palsy are exposed to the complications of the child’s care; they need kinds of support to reduce problems of care for the child. Therefore, the current study was done in order to discover the factors that influence role of caring parents while taking care of the cerebral palsy child.
Methods: This study is part of a qualitative study that was done in 2011-2013. Sampling was done based on goal-oriented and continued to saturate data. Thus، 33 participants including parents and family members of children with cerebral palsy that had been referred to Rehabilitation Centers in Tehran city and rehabilitation experts participated in this study. Data was collected through semi-structured interviews with each participant and analyzed through content analysis and continuous comparison of data.
Results: The results of data analysis showed the concept of parental capital with two categories: parents’ personal ability (subcategories: mental and physical ability in care, the ability to communicate with others, belief in the spiritual value of the child) and parental situational resources (subcategories: the socio-economic status of the family, the availability of helping relatives, cooperation and partnership in the family).
Conclusion: Parental capital as a supporting factor has an effectiveness on the sense of parents’ dominance on the situation of taking care of child; so، it is important to pay attention to the parents’ capital (internal and external) for educating and home care planning of affected child and family.
Methods: This study is part of a qualitative study that was done in 2011-2013. Sampling was done based on goal-oriented and continued to saturate data. Thus، 33 participants including parents and family members of children with cerebral palsy that had been referred to Rehabilitation Centers in Tehran city and rehabilitation experts participated in this study. Data was collected through semi-structured interviews with each participant and analyzed through content analysis and continuous comparison of data.
Results: The results of data analysis showed the concept of parental capital with two categories: parents’ personal ability (subcategories: mental and physical ability in care, the ability to communicate with others, belief in the spiritual value of the child) and parental situational resources (subcategories: the socio-economic status of the family, the availability of helping relatives, cooperation and partnership in the family).
Conclusion: Parental capital as a supporting factor has an effectiveness on the sense of parents’ dominance on the situation of taking care of child; so، it is important to pay attention to the parents’ capital (internal and external) for educating and home care planning of affected child and family.
Type of Study: Original Research |
Subject:
Nursing
Received: 2018/02/8 | Accepted: 2018/06/25 | Published: 2019/03/27
Received: 2018/02/8 | Accepted: 2018/06/25 | Published: 2019/03/27
References
1. Oskoui M, Coutinho F, Dykeman J, Jetté N, Pringsheim T. An Update on the Prevalence of Cerebral Palsy: A Systematic Review and Meta‐Analysis. Developmental Medicine and Child Neurology. 2013 Jun;55(6):509-19. [DOI:10.1111/dmcn.12080] [PMID]
2. Park E S, Oh W O, Suk M H, Yoon Y M. From Their Own Response: Experiences of Korean Children with Chronic Illness and their Families. Journal of Korean Academy of Child Health Nursing. 2009 Oct 1;15(4):350-8. [DOI:10.4094/jkachn.2009.15.4.350]
3. Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter S D. Russell D, et al. The Health and Well-Being of Caregivers of Children with Cerebral Palsy. Pediatrics. 2005 Jun 1;115(6):E626-36. [DOI:10.1542/peds.2004-1689] [PMID]
4. Hockenbery M J, Wilson D, Winkelstein M L. Wong's Essentials Of Pediatric Nursing. 7th Ed. London. St. Louis Mosby; 2005.
5. Lindblad B. M, Holritz Rasmussen B, Sandman PO. A Life Enriching Togetherness-Meanings of Informal Support When Being a Parent of a Child with Disability. Scandinavian Journal of Caring Sciences. 2007 Jun;21(2):238-46. [DOI:10.1111/j.1471-6712.2007.00462.x] [PMID]
6. Park SY, Glidden LM, Shin JY. Structural and Functional Aspects of Social Support for Mothers of Children with and Without Cognitive Delays in Vietnam. Journal of Applied Research in Intellectual Disabilities. 2010 Jan;23(1):38-51. [DOI:10.1111/j.1468-3148.2009.00550.x]
7. Reagin A E. Strengthening Health Care For Children: Primary Care And The Medical Home. 2009.
8. Coffey JS. Parenting a Child with Chronic Illness: A Metasynthesis. Pediatric Nursing. 2006 Jan 1;32(1).
9. The Michigan Developmental Disabilities Council. Family Support Services In Michigan: Family Resources And Services Utilization; 1992.
10. Jafary Manesh H , Ranjbaran M , Vakilian K , Rezaei K, Zand K, Tajik R. Survey of Levels of Anxiety and Depression in Parents of Children with Chronic Illness. Iranian Journal of Psychiatric Nursing. 2014;1(4):45-53.
11. Dambi JM, Jelsma J, Mlambo T. Caring for a Child with Cerebral Palsy: The Experience of Zimbabwean Mothers. African Journal of Disability. 2015;4(1). [DOI:10.4102/ajod.v4i1.168] [PMID] [PMCID]
12. Schuengel C, Rentinck I C M, Stolk J, Voorman J M, Loots G M P, Ketelaar M, et al. Parents' Reactions to the Diagnosis of Cerebral Palsy: Associations Between Resolution, Age and Severity of Disability. Child: Care, Health and Development. 2009 Sep;35(5):673-80. [DOI:10.1111/j.1365-2214.2009.00951.x] [PMID]
13. Oyegbile Y O, Brysiewicz P. Exploring Caregiver Burden Experienced By Family Caregivers Of Patients With End-Stage Renal Disease In Nigeria.International Journal Of Africa Nursing Sciences. 2017; 7:136-143. [DOI:10.1016/j.ijans.2017.11.005]
14. Teymouri F, Alhani F, Kazemnejad A. The Effect of the Family-Centered Empowerment Model on the Quality of Life in Parents of Children with Asthma. Scientific Journal of Hamadan Nursing and Midwifery Faculty. 2014; 22 (3):5-14.
15. Hsieh HF, Shannon SE. Three Approaches to Qualitative Content Analysis. Qualitative Health Research. 2005;15(9):1277-88. [DOI:10.1177/1049732305276687] [PMID]
16. Elo S, Kyngäs H. The Qualitative Content Analysis Process. Journal of Advanced Nursing. 2008 Apr;62(1):107-15. [DOI:10.1111/j.1365-2648.2007.04569.x] [PMID]
17. Polit DF, Beck CT. Essentials of Nursing Research: Methods, Appraisal, and Utilization. Lippincott Williams and Wilkins; 2006.
18. Graneheim UH, Lundman B. Qualitative Content Analysis in Nursing Research: Concepts, Procedures and Measures to Achieve Trustworthiness. Nurse Education Today. 2004 Feb 1;24(2):105-12. [DOI:10.1016/j.nedt.2003.10.001] [PMID]
19. Bakhtiari، M. Social Capital. Available From: Www.Pajoohe.Com. (May Access 2014).
20. Mohammady-Shahbalagy F, Dabbaghi F, Yadavar Nikravesh M. Facilitator and Barriers Factors in Family Caregiving Process of Iranian Frail Elderly: Qualitative Study. Iran Journal of Nursing. 2008 Dec;21(55):55-65.
21. Schwartz C. Parents of Children with Chronic Disabilities: The Gratification of Caregiving. Families in Society. 2003 Oct;84(4):576-84. [DOI:10.1606/1044-3894.143]
22. Guillamón N, Nieto R, Pousada M, Redolar D, Muñoz E, Hernández E, et al. Quality of Life and Mental Health Among Parents of Children with Cerebral Palsy: The Influence of Self‐Efficacy and Coping Strategies. Journal of Clinical Nursing. 2013 Jun;22(11-12):1579-90. [DOI:10.1111/jocn.12124] [PMID]
23. Bastani F, Ghasemi E, Negarandeh R, Haghan H. General Self-Efficacy Among Family's Female Caregiver of Elderly with Alzheimer's Disease. Journal of Hayat. 2012 Jun 15;18(2):27-37.
24. Nikfarid L, Eezadi H, Shakoori M. Coping Behaviors of Mothers of Chronically Ill Children. Iran Journal of Nursing (2008-5923). 2012 Feb 1;24(74).
25. Smith BA, Kaye DL. Treating Parents of Children with Chronic Health Conditions: The Role of the General Psychiatrist. Focus. 2012 Jul;10(3):255-65. [DOI:10.1176/appi.focus.10.3.255]
26. Pilowsky D J, Wickramaratne P, Yoko N, Weissman M M. Family Discord, Parental Depression, and Psychopathology in Offspring: 20-Year Follow-Up. Journal of the American Academy of Child and Adolescent Psychiatry. 2006 Apr 1;45(4):452-60. [DOI:10.1097/01.chi.0000198592.23078.8d] [PMID]
27. Meadows SO, Mclanahan SS, Brooks‐Gunn J. Parental Depression and Anxiety and Early Childhood Behavior Problems Across Family Types. Journal of Marriage and Family. 2007 Dec;69(5):1162-77. [DOI:10.1111/j.1741-3737.2007.00439.x]
28. Olsson MB, Hwang CP. Depression in Mothers and Fathers of Children with Intellectual Disability. Journal of Intellectual Disability Research. 2001 Dec;45(6):535-43. [DOI:10.1046/j.1365-2788.2001.00372.x] [PMID]
29. Li-Tsang CW, Yau MK, Yuen HK. Success in Parenting Children with Developmental Disabilities: Some Characteristics, Attitudes and Adaptive Coping Skills. The British Journal of Development Disabilities. 2001 Jul 1;47(93):61-71. [DOI:10.1179/096979501799155594]
30. Klassen A F, Gulati S, Granek L, Rosenberg-Yunger Z R S, Watt L, Sung L, et al. Understanding The Health Impact of Caregiving: A Qualitative Study of Immigrant Parents and Single Parents of Children with Cancer. Quality of Life Research. 2012 Nov 1;21(9):1595-605. [DOI:10.1007/s11136-011-0072-8] [PMID]
31. Khabaz M, Rezapour MirSalih Y, Abdi K, Safi M E. A Comparative Study Between the Role of Religious Orientations and Personality Dimensions in the Prediction of Coping Strategies in Mothers of Children with and Without Intellectual Disability. Journal of Rehabilitation. 2011 Jul 15;12(2):41-7.
32. Mir G, Tovey P. Asian Carers' Experiences of Medical and Social Care: The Case of Cerebral Palsy. British Journal of Social Work. 2003 Jun 1;33(4):465-79. [DOI:10.1093/bjsw/33.4.465]
33. Sharifi M, Fatehizade M. Correlation Between Religious Coping and Caregiver Depression Burnout in Family Caregivers. Modern Care , Scientific Quarterly of Birjand Nursing and Midwifery Faculty. 2012; 9 (4): 327-335.
Send email to the article author
| Rights and permissions | |
 |
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. |
Articles Copyright © The Author(s).
Owned by Hamadan University of Medical Sciences.
Published by UMSHA Press
Journal Tel: +9881 38380150
Publisher Tel: +988138381795
Website: http://nmj.umsha.ac.ir
Email: managingeditornmj
gmail.com
