Volume 29, Issue 4 (Fall 2021)                   Avicenna J Nurs Midwifery Care 2021, 29(4): 302-313 | Back to browse issues page

Ethics code: (IR.IAU.KHUISF.REC.1398.135)

XML Persian Abstract Print

Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:
Sadeghi N, Hesami S A, Sadeghi M, Sadeghi S. Nurses' Experiences of Palliative Care in the Neonatal Intensive Care Unit: A Qualitative Study. Avicenna J Nurs Midwifery Care 2021; 29 (4) :302-313
URL: http://nmj.umsha.ac.ir/article-1-2328-en.html
Nurses' Experiences of Palliative Care in the Neonatal Intensive Care Unit: A Qualitative Study
Narges Sadeghi * 1, Seyyed Amirhossein Hesami2 , Mahdi Sadeghi2 , Shima Sadeghi3
1- Associated Professor, Community Health Research Center, Isfahan (Khorasgan) Branch, Islamic Azad University, Isfahan, Iran , n45sadeghi@yahoo.com
2- Medical Student, Community Health Research Center, Isfahan (Khorasgan) Branch, Isfahan, Islamic Azad University, Iran
3- MSc Nurse, Community Health Research Center, Isfahan (Khorasgan) Branch, Islamic Azad University, Isfahan, Iran
Abstract:   (3743 Views)

Background and Objective: Palliative care for newborns and their families is urgent. Nurses' experiences need to be considered in order to implement palliative care. Therefore, the present study was conducted to explain the Nurses' Experiences of Palliative Care in the NICU.
Material and Methods: This study was conducted by qualitative content analysis in the neonatal intensive care units of Isfahan, Iran, in 2020. Inclusion criteria for nurses were the consent to participate in the study and experience of caring for the newborn and their family at the end of life. For data collection by the purposeful sampling method, in-depth semi-structured interviews were conducted with 12 nurses. Interviews were recorded, typed, and analyzed. Goba and Lincoln criteria were used to ensure the rigor of the data.
Results: The first theme was palliative care for the newborn. This theme consists of two categories: "compassionate end-of-life care" and " spiritual end-of-life care". The second theme was palliative care of the family. This theme consists of two categories: "Palliative care of the family before the death of the newborn" and "Palliative care of the family after the death of the newborn ".
Conclusion: The results of this research are in line with the WHO definition of palliative care in pediatric, which refers to the active total care of the child's body, mind and spirit, and family support. The results of this research are used to improve the care of infants and families at the end of life and death for officials and nurses of NICU.

Keywords: Palliative care, Neonatal intensive care unit, Qualitative study
Persian Full-Text [PDF 693 kb]   (1457 Downloads) |   |   Extended Abstract (HTML)  (2047 Views)  

✅ The results of this research are in line with the WHO definition of palliative care in pediatric, which refers to the active total care of the child's body, mind and spirit, and family support. The results of this research are used to improve the care of infants and families at the end of life and death for officials and nurses of NICU.


Type of Study: Original Research | Subject: Midwifery
Received: 2021/04/28 | Accepted: 2021/09/4 | Published: 2021/12/21
References
1. Azzizadeh Forouzi M, Banazadeh M, Ahmadi JS, Razban F. Barriers of palliative care in neonatal intensive care units: attitude of neonatal nurses in southeast Iran. Am J Hosp Palliat Med. 2017;34(3):205-11. [DOI:10.1177/1049909115616597] [PMID]
2. Beltran SJ, Hamel MN. Caring for dying infants: a systematic review of healthcare providers’ perspectives of neonatal palliative care. American Journal of Hospice and Palliative Medicine®. 2021 Aug;38(8):1013-27. [DOI:10.1177/1049909120965949] [PMID]
3. Jackson C, Vasudevan C. Palliative care in the neonatal intensive care unit. Paediatr Child Health. 2020;30(4):124-8. [DOI:10.1016/j.paed.2020.01.002]
4. Farhat A, Chitgar Rahimi F, Mohammadzade A, Saeedi R, Ghiassi M, Omidbigi J, et al. The Neonatal Outcomes and resuscitation rate of Neonates at Imam Reza Hospital, Mashhad, Iran. J Midwifery Reprod Health. 2020;8(2):2162-7.
5. Moura H, Costa V, Rodrigues M, Almeida F, Maia T, Guimarães H. End of life in the neonatal intensive care unit. Clin. 2011;66(9):1569-72. [DOI:10.1590/S1807-59322011000900011] [PMID] [PMCID]
6. Rosenbaum JL, Smith JR, Zollfrank R. Neonatal end-of-life spiritual support care. J perinat Neonatal Nurs. 2011;25(1):61-9. [DOI:10.1097/JPN.0b013e318209e1d2] [PMID]
7. Hockenberry MJ, Wilson D. Wong's nursing care of infants and children-E-book: Elsevier Health Sci. 2018.
8. Kenner C, Press J, Ryan D. Recommendations for palliative and bereavement care in the NICU: a family-centered integrative approach. J Perinatol. 2015;35 Suppl 1:S19-23. [DOI:10.1038/jp.2015.145] [PMID] [PMCID]
9. Banazadeh M, Rafii F. A Concept Analysis of Neonatal Palliative Care in Nursing: Introducing a Dimensional Analysis. Compr Child Adolesc Nurs. 2020:1-26. [DOI:10.1080/24694193.2020.1783029] [PMID]
10. Quinn M, Weiss AB, Crist JD. Early for Everyone: Reconceptualizing Palliative Care in the Neonatal Intensive Care Unit. Adv Neonatal Care. 2020;20(2):109-17. [DOI:10.1097/ANC.0000000000000707] [PMID]
11. Walters A, Grosse J. Is this my home? a palliative care journey through life and death in the NICU: a case report. Adv Neonatal Care. 2020;20(2):127-35. [DOI:10.1097/ANC.0000000000000697] [PMID]
12. McLaughlin SN, Song M-K, Hertzberg V, Piazza AJ. Use of Palliative Care Consultation Services for Infants With Life-Threatening Conditions in a Metropolitan Hospital. Adv Neonatal Care. 2020;20(2):136-41. [DOI:10.1097/ANC.0000000000000698] [PMID]
13. Green A, Kim-Godwin YS, Jones CW. Perceptions of spiritual care education, competence, and barriers in providing spiritual care among registered nurses. J Holistic Nurs. 2020;38(1):41-51. [DOI:10.1177/0898010119885266] [PMID]
14. Branchett K, Stretton J. Neonatal palliative and end of life care: What parents want from professionals. J Neonatal Nurs. 2012;18(2):40-4. [DOI:10.1016/j.jnn.2012.01.009]
15. Kain VJ. An exploration of the grief experiences of neonatal nurses: A focus group study. J Neonatal Nurs. 2013;19(2):80-8. [DOI:10.1016/j.jnn.2012.04.001]
16. Fortney CA, Steward DK. A qualitative study of nurse observations of symptoms in infants at end-of-life in the neonatal intensive care unit. Intensive Crit Care Nurs. 2017;40:57-63. [DOI:10.1016/j.iccn.2016.10.004] [PMID] [PMCID]
17. Hughes MT, Smith TJ. The growth of palliative care in the United States. Annu Rev Public Health. 2014;35:459-75. [DOI:10.1146/annurev-publhealth-032013-182406] [PMID]
18. Kain VJ, Chin SD. Conceptually Redefining Neonatal Palliative Care. Adv Neonatal Care. 2020;20(3):187-95. [DOI:10.1097/ANC.0000000000000731] [PMID]
19. Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Q Health Res. 2005;15(9):1277-88. [DOI:10.1177/1049732305276687] [PMID]
20. Munhall PL, Chenail RJ. Qualitative research proposals and reports: A guide: Jones & Bartlett Learning; 2008.
21. Speziale HS, Streubert HJ, Carpenter DR. Qualitative research in nursing: Advancing the humanistic imperative: Lippincott Williams & Wilkins; 2011.
22. Creswell JW, Tashakkori A. Differing perspectives on mixed methods research. Sage Publications Sage CA: Los Angeles, CA; 2007. [DOI:10.1177/1558689807306132]
23. Polit DF, Beck CT. Essentials of nursing research: Appraising evidence for nursing practice: Lippincott Williams & Wilkins; 2009.
24. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurs Educ today. 2004;24(2):105-12. [DOI:10.1016/j.nedt.2003.10.001] [PMID]
25. Cerratti F, Tomietto M, Della Pelle C, Kain V, Di Giovanni P, Rasero L, et al. Italian Nurses' Attitudes Towards Neonatal Palliative Care: A Cross‐Sectional Survey. J Nurs Scholarsh. 2020;52(6):661-70. [DOI:10.1111/jnu.12600] [PMID]
26. Richards CA, Starks H, O'Connor MR, Bourget E, Lindhorst T, Hays R, et al. When and why do neonatal and pediatric critical care physicians consult palliative care? Am J Hosp Palliat Med. 2018;35(6):840-6. [DOI:10.1177/1049909117739853] [PMID] [PMCID]
27. Batstone E, Bailey C, Hallett N. Spiritual care provision to end‐of‐life patients: A systematic literature review. J Clin Nurs. 2020;29(19-20):3609-24. [DOI:10.1111/jocn.15411] [PMID]
Add your comments about this article : Your username or Email:
CAPTCHA
Send email to the article author

Rights and permissions
Creative Commons License This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

© 2025 CC BY-NC 4.0 | Avicenna Journal of Nursing and Midwifery Care

Designed & Developed by : Yektaweb